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Frequently Asked Questions
Index
Introduction
Specific conditions
Existing networks
Existing guidelines and consensus statements
Clinical Trials
Publications
Webinars
Participating RCs
Contact
Patient information materials
Index
Introduction
Specific conditions
Existing networks
Existing guidelines and consensus statements
Clinical Trials
Publications
Webinars
Participating RCs
Contact
Patient information materials
Frequently Asked Questions
General
How many RCs are Endo-ERN members?
What is the project period of Endo-ERN?
How can I stay updated about Endo-ERN?
How can my centre become an Endo-ERN member?
How do I become a patient representative?
Where can I find more information about ERNs?
How do current members of Endo-ERN expand their area of expertise/disease coverage?
Information on planned medical treatment abroad
I’m a patient. How can I access the experts in the Endo-ERN network?
Affiliated Partners
What type of Affiliated Partners exist?
What are the criteria for Affiliated Partners?
Where can the Board Statements related to Affiliated Partners be found?
What is the expected role of the Affiliated Partners?
To whom will the Member States send the designation letters?
Evaluation
Who is the Independent Evaluation Body (IEB)?
When is the deadline for the submission of the Self-Evaluation form?
Where do I fill in the HCP Self-Evaluation form?
What is the timeline for the 5-year Evaluation?
Where can I find informational webinars and videos about the 5-year Evaluation?
Do I have to complete the form all at once or can I save my progress on different occasions?
Are the same documents required that were initially assessed when applying to be a member HCP?
Will our initial Assessment form be compared to the Self-Evaluation form?
Will Endo-ERN see the outcome of our individual evaluation?
Does Endo-ERN have any Clinical Indicators?
Can I obtain my HCPs Continuous Monitoring submission from 2019-2021 from Endo-ERN?
Who in our HCP team need to be involved?
Who can I contact with questions on the Self-Evaluation? Who do I contact if there are issues with the online submission tool?
Information video for patients and healthcare professionals
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