Fabry Care-Life-Balance Survey

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This survey contains 20 questions and will take about 10 minutes to complete.
Please choose the most suitable answer for each question. Answers are anonymous.
The data collected is only used as a reference point during medical meetings.
Your email address and/or any other personal data will not be recorded
when you complete this survey.

About You

1. You are based in: Please select one answer

Outside of EU (in Europe)

North America

South America

Africa Region

Asia Region

Australia/Oceania Region

I prefer not to answer

Clear selection

2. How would you best describe yourself: Please select all that apply

I am a Fabry patient

I am a Fabry patients' family member or caregiver (includes partner)

I am a medical professional

I prefer not to answer

3. Are you currently receiving treatment for Fabry Disease? Please select one answer

Yes, I am on ERT

Yes, I am on Chaperone

Yes, I am on other treatment

No, I do not have access to treatment

No, I do not want to even if it's available

I prefer not to answer

Other:

Clear selection

4. Where are you receiving treatment for Fabry Disease? Please select all that apply

At a hospital

At a Fabry Center

At a clinic

At home (home infusion)

This question doesn't apply to me because I am not receiving treatment

Other:

5. Would you prefer home infusion over hospital treatment?

Yes

This question doesn't apply to me because I am not receiving treatment

Other:

Clear selection

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